Remember Their Stories

In Memoriam

Hundreds of members of the deaf community have died of AIDS. The stigma associated with the disease means we will never know all of their names - many died in shame and silence.

A black quilt panel with the name John Canady written on a pink section. On a yellow section are drawings reproduced from an ASL textbook, including the sign for one thousand.

Quilt panel replicating Canady’s images from a sign language textbook. NAMES Project AIDS Memorial Quilt.

John Canady, '72, was from a large multigenerational deaf family, and he worked for the postal service. His signing was so beautiful, he became a model for an ASL textbook. His hands were silenced, though, when a hospital treating him for AIDS restrained them to the bed, preventing him from communicating. This injustice prompted deaf activists to demand increased training for hospital staff. Canady died a week later. It was 1986, and he was 37 years old.

A black man wearing a purple t-shirt laughs heartily, with all his teeth showing.

Terry Lewis Mackin, Jr. Deaf Lost to AIDS website, deafaids.info.

Terry Lewis Mackin, Jr. attended RIT, making many friends through his sincere kindness. He was a dancer with the group Flux Fusion, and although he got a degree in Business Administration, he moved to Los Angeles to fulfill his dream of becoming a professional dancer. A few months later, he contracted pneumonia. He died suddenly in 2008, at 26 years old.

A young black woman with wavy hair smiles widely. She is standing in front of a sign that says WISH.

Rosie Lanier Rodriquez. Deaf Lost to AIDS website, deafaids.info.

Rosie Lanier Rodriquez was a black trans woman who loved to lip sync, cook, and go on adventures. Her friends described her as full of laughter and life. But her family-written obituary misgendered and misnamed her against her wishes, a practice known as “deadnaming.” She died in 2006, at 37 years old.

A white man wearing a black leather jacket smiles. He is also wearing a Santa hat, and there is a rainbow flag pin on his jacket.

Tom Kane. Scrapbook, vol. 4. Deaf AIDS Center Collection, San Francisco Public Library. 1995.

Tom Kane was an activist everywhere he went. He founded the Deaf NAMES Project to create memorial quilt panels for deaf people, was one of the first TTY operators on the Metro TeenAIDS Hotline, served as an officer of the Capital Metro Rainbow Alliance, and co-founded Deaf AIDS Action. Kane loved sunflowers as a symbol of life, surrounding himself with them. He died in 1995, at 45 years old.