Where We Are Today
The AIDS crisis is over, but the AIDS epidemic is still with us. HIV is now a survivable disease, thanks to advanced treatment options. But with over 80 new HIV diagnoses in the United States every day, we need to take care of our community. HIV changes your life forever - you have to work hard to survive.
"I don't know if my community is surviving or being killed off."
-Marc Byrd, 2017
Deaf people still face barriers to understanding HIV and accessing care. Organizations have published comic book style pamphlets to visually communicate about HIV, but hearing doctors continue to serve as barriers to treatment because they do not understand deaf patients’ needs. Nationwide, one in five HIV diagnoses are in patients ages 13-24, and 80% are queer men. Over half of new diagnoses are members of the Black community. But we don’t know how many deaf people are diagnosed with HIV, because no one is keeping track - only one state, Maryland, collects data on hearing status during the HIV testing process.
If you or someone you care about is concerned about HIV, there are now deaf-friendly support networks nationwide.
- Gallaudet University’s Health and Wellness Program Office
- Whitman-Walker Health
- Mervin Primeaux-O’Bryant Foundation
- Deaf-REACH’s HIV Prevention Program
- Greater Los Angeles Agency on Deafness’s HIV Prevention Program
- Deaf Community Advocacy Network’s Deaf HIV Program